Personal Stories

Every year, new cases of meningitis affect the lives and families of New Zealanders.

Meningitis can strike anyone, at any time. Symptoms vary and can be difficult to diagnose. Every story is different. Through the bravery and courage of sharing personal stories with other New Zealanders, we can work together to raise awareness of this devastating disease to ensure no other individual or family experiences heartbreak or loss. We strive for a world without meningitis.

Sadies's Story

In October 2025, Sadie’s mum Sophia took her to an after hours medical centre who advised her obs were slightly elevated but sent them home. But as soon as they got home, Sophia new something was seriously wrong.

Claudia’s Story

In September 2022, Claudia woke up unwell with what she thought was the flu. Just over twenty fours hours later she was in an induced coma in hospital.

Dani’s Story

In August 2002, when I was 14, life was about school, friends, and little things like getting excited about the new Subway opening the next day. 24 hours later I was fighting for my life.

Aleina’s Story

Aleina’s Dad calls her the ‘Million Dollar Baby’, given what he estimates her recovery from meningococcal meningitis has cost the New Zealand health system.

Suede’s Story

It was the 15th of February 2015 when Suede, who was just two and a half months old, fell seriously ill. Suede’s mum, Ashleigh, shares how a normal day quickly turned into a nightmare.

Dion Hodder - Story by Dion's Mum, Todd

Dion Hodder, affectionately known as D to his mates and Dion Ty when he was in trouble with his mother, was taken from us far too soon on October 20, 2018, by meningococcal septicaemia due to having meningitis at the tender age of 16.

Greta’s Story

In September 2022, Greta Beach, a full time working single mum, faced an unexpected and terrifying health crisis. When her son was 10 months old, she contracted meningitis.

Ryan and Bronte's Story

In a picturesque Samoan setting, what was meant to be a tranquil family holiday for Ryan Bowring and his family took an unexpected turn into a medical emergency, with six-year-old daughter Bronte falling victim to meningitis.

Evie and Angie’s story

In their account shared for World Meningitis Day 2023, mother-daughter duo Angie and Evie Dent recounts a harrowing journey of how Evie faced meningitis at just 20 years old.

Carolyn’s Story

Carolyn Pere's life took a dramatic turn in 2017 when she contracted meningitis at 58 years old, thrusting her on a journey she calls her "Highway to Hell."

Kaela’s Story

In 2007, 21-year-old Kaela had spent the New Year celebrating with friends, unaware that in a few days the stomach flu she had thought she’d recovered from would turn out to be meningitis, resulting in a two-year battle for her health.

Janelle's Story (for Vincent)

Large in stature, and large in heart is how Invercargill Mum, Janelle, would describe her 17-year-old son Vincent, who was well-loved by his whānau and friends.

Phoebe's Story

Follow Phoebe's journey from what seemed like a common flu to a life-threatening battle with bacterial meningitis, as her mother's instincts ultimately saved her life.

Lindsey and Lauren’s story

Vaccinated against one strain but left vulnerable to another, follow the journey of Lauren and her mother Lindsey as they navigate the devastating consequences of meningitis and fight for awareness and prevention.

Bridget's Story

Prior to attending university, Bridget picked up a pamphlet about the meningitis vaccine but thought it would never happen to her. Today, after surviving meningitis she’s a strong advocate for the vaccine.

'Alisi's Story

Alisi shares her gratitude for having lived a mostly normal life, despite ongoing health complications.

Emma's Story

Emma was just five years old when she contracted meningitis. Now 22, Emma studies at the University of Canterbury and is completing her Masters of Science.

Koen's Story

Koen is now a cheeky little 4-year-old who always amazes us and his therapists with how far he has come after a pretty devastating list of possible outcomes.

Millie's Story

When Millie fell ill at 9 months old we didn’t know what to expect as first time parents. We never expected meningitis.

Peter & Helen's Story

Peter and Helen Rowlands’ lives have been impacted by meningitis not just once, but twice.

Chloe's Story

On November 7 2018, Chloe, who would have turned 19 in February, died in her dorm room at Victoria University.

Claire and Gerard’s Story (for Courtenay)

Courtenay was intelligent, beautiful, sporty and full of life. The void she has left in our life is a forever reminder…

Sarah's Story

I woke around 2am (Monday 19th August) and felt numb all down my left side. I tried to pick up my cellphone which was beside my bed…

Malina's Story

I woke in the early hours of Wednesday morning and I just knew something was wrong…

Matthew's Story

Matthew was three and a half when he contracted suspected bacterial meningitis in 2009…

Tania's Story

Timely medical intervention, a strong will to live and unwavering family support ensured Tania’s survival…

Sheryl's Diary

Her quick thinking meant that a meningococcal B infection was diagnosed in time for Sara to receive life-saving treatment…

Sara's Story

Her personal and career aspirations were suddenly put on hold as she was struck down with meningitis…

Elly’s Story

Ten years on, Elly's mother Jo shares with us the story of her little girls fight to live…

Lisa's Story (for Tesh)

The disease struck quickly and took hold of her body so rapidly that there was little the medical specialists could do...

Lesley's Story (for David Jnr)

David Jnr was only 14 months old when he contracted pneumococcal meningitis…

Phil's Story

That September he was struck down by bacterial meningitis leading to three weeks in a coma in ICU at Dunedin Hospital…

Kardas' Story

Kardas was an active, healthy seven year old when he contracted meninigococcal septicaemia in 2003…

Lewie's Story

Lewie was diagnosed with viral meningitis at one month of age…

Loken's Story

It all happened so fast and they said something about meningococcal septicaemia and meningitis…

Share your story

If you have been impacted by this disease, your story and your personal journey may assist another person or family.